Norfolk, Norwich and Waveney Branch



For Professionals



Support for Health & Social Care Professionals


The MND Association produces a very wide range of publications including leaflets and comprehensive guidelines on aspects of care management all of which are available here or to order by post by contacting the MND Connect team on 0808 802 6262.


The branch plays an active part in liaising and networking with health and social care professionals aiming for the best possible care for people with MND. Our initial goal is to publicise the events being hosted by the Motor Neurone Disease Association in East Anglia.


MND is a relatively rare disease so it is important that the branch supports extra training and education about MND care for health and social care professionals.


The forum for health and social care professionals closed on 24 January 2018 and has been replaced with a question and answer section in the Education Newsletter. You can sign up for the Education Update here


Red Flag Diagnosis tool:

The MND Association has been working with The Royal College of General Practitioners on an early diagnosis of MND and a new Red Flag tool which will help reduce inaccurate referrals and therefore reduce the time to diagnosis.


You can download the Red Flag diagnosis tool here.


Just in case kit.

Just In Case Kit

The updated MND Just in Case kit is designed to hold medication that may be needed if a person with MND experiences a sudden change in symptoms such as choking, breathlessness and related anxiety/panic. The kit also includes practical information for carers and health and social care professionals on how to manage these situations.


The MND Just in case kit can be ordered from MND Connect by a GP for a named person with MND. The GP will prescribe the medications to be kept in the kit. The box has two sections: one for medications that can be used by a doctor or nurse, and the other for medications that can be used by a carer.


For more information click here:


MND in acute and emergency guide

The Association has updated the guide for health professionals working in acute and emergency medicine. This publication gives succinct guidance on actions the professional should take and things to consider when treating someone with MND, and has been endorsed by The Royal College of Emergency Medicine and the College of Paramedics.



Augmentative and alternative communication for MND


Best practice for professionals - follow the link for a range of information.


Complex cases can be referred to Communication Aid Service, East of England. This flyer shows the area covered by the service and criteria for referral.



Upcoming events for professionals


The full range of Education Events currently available from the MND Association can be found here.