Norfolk, Norwich and Waveney Branch



News 2021



The branch publishes Fightback, our newsletter, three times a year. Its contents include reports of recent events, notice of future events in aid of the MND Association, a thank those who have raised or contributed funds for the work of the branch and news from National Office.



Sunday 19 December 2021

by Darren Millard

The Seadell Bar in Hemsby has always held a close affiliation to the MND Association. Local landlady, Jacki Aldridge’s husband and father of four children passed away from motor neurone disease in December 2011 after four years of suffering with MND. Also our dear friend and work colleague Gavin Casey lost his battle with MND in April 2019.


Local entertainer Daz Lewis contacted Jacki and wanted to do a “Comeback” charity gig and asked for suggestions on a charity, there was only ever going to be one charity.


After a successful event from Daz Lewis and 2 Tons of Rock and Roll on the 19th December, the grand total raised was £844.25. This was raised from donations, raffle and a meat raffle.


Thank you to everyone who took part or helped with the event. Special thanks to Daz Lewis, 2 Tons of Rock and Roll and Allen’s Butchers of Hemsby.


We would like to add our thanks to everyone who supported this event and helped to raise such a wonderful amount of money.


Sunday 5 December 2021 AGM Cawston Bowls Club


Malcolm Chubbock, branch chair, attended the annual general meeting of the Cawston Bowls Club. He had been invited to give a short talk about the work of the Norfolk, Norwich and Waveney Branch. He took the opportunity to express our thanks to the club for their very generous donation of £1,100, which we received in September.


The Cawston Triple Bowls League consists of a group of ten separate bowls clubs who compete against each other during the course of a season. All their matches are played on outdoor greens, with some clubs sharing a green. The Cawston Triple Bowls League committee, consisting of members of the club, are elected or re-elected at each AGM, whilst the President is nominated from a different club each year.


Each September they have a President’s Day with various competitions and fundraising events, the proceeds of which are donated to a charity of the President’s choice. The President for the last year, Mrs Sue Ealden, nominated us as the recipient of the funds accumulated during her year in office. She chose our branch as her friend Brenda had been supported by us prior to her death from motor neurone disease. We are extremely grateful to everyone who helped raise such a splendid sum to support our work.


Mrs Ealden has since moved away from the area and was not able to be present at the AGM. Malcolm is pictured here with Mr Colin Pardon, the current Chairman of the Cawston Triple Bowls League committee.



Wednesday 1 December 2021 Lisa’s Ice foot challenge


Former professional footballer Len Johnrose challenged his football family – all 92 clubs across the top four divisions in England and Wales as well as their fans – and anyone else who’s cool enough to take part to do his #IceFoot92 challenge. He asked people to stand with their feet in a bucket of ice for 92 seconds.


Lisa Wilson and a colleague were “cool enough” and completed the challenge on 1 December, sitting with their feet in a bucket of ice for 92 seconds - as evidenced in the photo. Lisa said, “to be honest after the initial 30 second shock I didn’t find it to be that bad…”; it must be true - she is smiling!


They raised £125.26. Thank you to everyone who contributed.


If you would like to read more about Lisa’s fundraising in memory of her husband please visit




Sunday 7 November 2021 Open Meeting, Wortwell Community Centre


This was our first face to face meeting since the last open meeting at Wortwell in November 2019. It was wonderful to welcome thirty people, friends old and new. Despite the masks, the sanitiser and reducing the numbers on tables to four, it still felt like a happy and relaxed social gathering; there was a lovely atmosphere. The lunch was excellent thanks to Kelda and her assistant. We hope to see everyone again at our next open meeting, and that those who weren’t able to attend or perhaps felt a little nervous in view of the ongoing pandemic might be encouraged to join us. Thank you to everyone who left such lovely comments and feedback for the CAF Tourle Foundation who provided a grant through the Norfolk Community Foundation to support our open meetings.


We were pleased to be joined by Professor Eneida Mioshi and Polly Trucco and to hear a presentation on their research opportunities. It was encouraging to see that a number of people took copies of Polly’s questionnaire to complete. As always it was good to be joined by Helen Copsey and Emma Larner; not only do they provide wonderful support to people living with and affected by MND but also to the Branch – we are so lucky that they are willing to give up their own time to join us for these events.


We had a selection of Association merchandise andChristmas cards for sale. Cash sales of merchandise made £49.80 and the payments through our new sumup card machine totalled £59.91 (after fees of £1.04). Thank you to everyone who gave raffle prizes, the raffle raised £116. We were also grateful for a donation in lieu of buying and sending Christmas cards.


We were sorry that Judy Burns-Thomson, who did so much to organise the event, was unwell on the day and unable to join us. Thank you Judy, we were thinking of you! Thanks to Jo for ordering the merchandise – we missed you too!



Sunday 17 October 2021 Cambridge Half Marathon

Alex Baldwin, son-in-law of one of our members who is living with MND, successfully completed the 2021 Cambridge Half Marathon in 1 hour 53 minutes. We are delighted to see that, as of 11 November, he has raised £2,000 for the MND Association, eight times more than his target!


You can visit his Just Giving page if you would like to donate. Thank you!


Thursday 7 October Wymondham U3A Coffee Morning

Sue Heal and Gilly Spencer, Chair of Wymondham U3A in front of the MND Association stand in Central Hall.

Wymondham U3A held their regular coffee morning in Central Hall, Wymondham from 10am to 12 noon. Just a week or so beforehand Sue was invited to put up an information stand and a stall with Association merchandise - including some Christmas cards. Rather than make this a large event to raise funds for our branch, given that they held an all day event recruiting new members just two week earlier, the Chairperson has agreed to do something on a larger scale in 2022.


Malcolm and Sue spoke to a number of people about volunteering roles within the branch as well as selling merchandise. It would be wonderful to welcome some new Association Visitors!


The Wymondham U3A also hosts an open meeting on the first Thursday of each month when they have a speaker followed by tea, coffee and chat. Sue, who is a member, was invited to say a few words about the work of the Association after the main speaker. She kept the stall running in the afternoon, and was pleased to talk with individuals about our work.


The event raised £233.80, which included some very welcome donations.


Duncan Baker’s London Marathon 2021 - 26 miles for 26 Charities

On Sunday 3 October, Duncan Baker MP for North Norfolk ran all 26.2 miles of the London Marathon with the aim of raising £26,000 for 26 charities chosen by the residents of North Norfolk. Duncan delivered over 7,000 leaflets during the summer - on top of his training. The result was an enormous wave of support, with thousands of people getting behind his initiative to raise so much for so many charities. He also wrote to businesses in the constituency and spoke to people directly about his goals. Shortly after the event Duncan wrote to say, the cheques need to be banked and the gift aid claimed, but he expected the total to come in somewhere between £30,000 and £35,000. In fact he raised a staggering £38,196.18 to be shared between the 26 charities! A remarkable achievement.


On Friday 9 July, during a live draw, the MND Association was chosen for mile 10. All of the charitable organisations that Duncan is supporting are either based in North Norfolk or operate projects and programmes in the constituency. He is working with the Norfolk Community Foundation, who will receive all donations on his behalf and ensure they are distributed to the 26 charities.


Duncan hosted an online chat with representatives of each of the charities on his Facebook page. Mile 10 featured on his Facebook page on 15 September; you can watch Sue and Judy in conversation with Duncan shared to the Branch Facebook page the same day.


Duncan emailed a report of the day to the charities that he is supporting:


"Race day came and the weather was perfect. The crowds were incredible and the run went well. All along I was so nervous about anything going wrong and not letting you down. It was the thought of making sure that every single charity benefitting that kept me going. It is a strange sensation because many parts of the run I can’t recall, due to the concentration to keep running and not walk at all. That was right in the forefront of my mind. I wanted to run every inch of the 26.2 miles – which I’m paying for now!


At mile 21 I began to really struggle. Time to dig deep and grind out the last 5 miles when the legs weren’t happy. But we did it and I was very pleased with my time of 4 hours 16 mins, for my first proper timed marathon."


We thank Duncan for his fundraising support for the Association and for his on going support for our campaigning work.




Sunday 12 September, Lisa’s Great North Run Half Marathon

Lisa travelled to Newcastle by train on Friday 10 in readiness for the Great North Run, a half marathon, on Sunday. The photo shows Lisa at the start and then at the end of the race with the shirt and medal. She finished in 2 hours 27 minutes and 9 seconds, 27 minutes shorter than her personal best, but still an amazing achievement. Lisa was pleased considering that a demanding full-time job leaves little time for training.


The organisers planned a one-off new route for 2021 in order to ensure safety for social distancing. It started and finished in Newcastle with runners crossing the Tyne Bridge twice. Runners who had previously run the race said it was tougher than previous years, especially as the end towards the finish line on the Town Moor was not downhill to the usual finish line.


In Lisa’s words, “the atmosphere was great and the constant calling out to each other as MND runners either overtook each other, or were on opposite sides, along with the crowd cheering us on, offering sweets to keep us going and the kids holding hands out to high five us was memorable.” For Lisa, “the hardest point for me was the usual cross over the finish line, knowing that Steve was not there to great me as he always did in the past”. Fortunately her friend Pat, who was unable to run through injury, was on the end of the phone as Steve would have been for the last mile.


Lisa had been planning to take part in Endure24, but the team entry has been deferred until 2022. However, she will be running a virtual London Marathon around Lowestoft on Sunday 3 October, 2021 – raising awareness of MND.


If you would like to sponsor Lisa please visit her just giving page at


Lisa Great North Run


Sunday 29 August 2021 Charity Garden and Petite Craft Fair, Thurning Hall

On 29 August, Jo, Sue and Malcolm arrived at 9am to begin setting up the Branch stall in the beautiful gardens at Thurning Hall – we were soon joined by Judy, Trish and Sandi. The craft stalls supporting the event provided a showcase for the work of local artisans selling their homemade wares from pottery, to wood work, quirky plant holders with plants, bead work and wax melts to mention just a few.


The gardens opened at 10:30am to welcome 250 ticket holders and guests. Lara and her team managed the car park, entrance, track and trace, and gave out leaflets raising awareness of MND and our need for Association Visitors. Collection buckets were available so that guests could make donations – we received £159.99. Money raised from the sale of tickets will be added after the major expenses have been met – costs levied by Eventbrite and the hire of portaloos.


Refreshments were available for purchase throughout the day – teas, coffees, hot chocolate and carrot cake, and from the bar something a little stronger. At the end of the day the Sunset Cafe made a donation of £50 to the Branch.


The raffle raised £255, with the first prize being the beautiful double quilt that had been donated to the Branch. The quilt had a history, a lady living with MND started the quilt, but sadly died before it was finished – the work was taken on and completed by the local quilting group. We were delighted to be joined by a member of the group who also volunteered to help us on the day together with her husband.


We held a silent auction for a Norwich City Shirt, which raised £125. It too had a history, having been given as a birthday present to a gentleman living with MND. His widow generously donated the shirt to us with the wish that it be offered for auction to raise funds in support of the work of our Branch.


The sale of merchandise raised £205.30. Possibly the most popular item was the MND Association koala, though we also sold some early Christmas cards!


Sue created the rota for the day and wishes to thank everyone who volunteered to help either on the stall or as stewards helping people navigate the one-way system around the garden – Judy, Christine, Anne, Malcolm, Judith, Alan, Monica, Michael and Trish M. Special thanks to Jo, Trish and Sandi who were also there all day. Trish summed it up when she said, “What a great day, it was lovely seeing you all.” It was our first in-person event since the start of the pandemic in 2020. It was a very happy event in wonderful surroundings providing an opportunity to meet up and to make new friends. We were also lucky with the weather, the rain waited until we had packed up at the end of the day.


We are extremely grateful to Lara Lacey and her mother, for opening their gardens in support of the Norfolk, Norwich and Waveney Branch of the MND Association and making everything possible. We appreciate just how much extra work the pandemic created behind the scenes; thank you – it is appreciated.


There was a personal reason for organising this event and supporting the Branch, a much loved close relative was diagnosed motor neurone disease in 2018. A moving tribute to Jake was published in the EDP earlier this year.



EDP Cash for Charities

In August, Malcolm received an email from the Promotions Executive and Consumer Event Coordinator Norfolk, in which we learnt that over 170,000 tokens were collected including 910 from the Norfolk, Norwich and Waveney Branch. This meant we were awarded £105.48. The full results were reported in the EDP here.


Thank you to everyone who collected tokens on our behalf and sent them to Malcolm.


Wednesday 25 August


The Norfolk, Norwich and Waveney Branch was delighted to receive a very generous donation of £500 from the Eliel Community First Revenue Fund supported by Norfolk Community Foundation. This money is available to help fund the operational costs of the branch as we seek to support those living with MND, their family and carers.


Norfolk Community Foundation is an independent, registered charity that bridges the gap between those in need and those who can help. As part of a national movement of Community Foundations, Norfolk Community Foundation is working together with local philanthropists to make a difference to lives in Norfolk


Saturday 21 August Open Garden Cawston


We are very grateful to Tina and Tim Macdonald who opened their garden to visitors in support of the MND Association. Tim’s Uncle John died of motor neurone disease; Tim said his Uncle was a lovely man who never complained even when the disease meant that his body would not do as he wanted it to.


Local businesses donated raffle prizes including a mega Hydrangea from the Woodland Nursery, Cawston Road and a £25 voucher from the Marsham Arms. Tim and Tina added a £25 garden voucher.


Cake and a cuppa were available, or a beer for those who preferred, for a small donation. The event raised £250 for the branch.


Trish Bates, our treasurer, visited the gardens and took some photos. The wooden owl in the photo came from Uncle John’s garden.


Monday 21 June 2021 Global MND Awareness Day - Norwich City Hall was lit in blue and orange.

The Norfolk, Norwich and Waveney Branch joined communities across the world mark Global MND Awareness Day. This year our focus was on MND Research. We are proud to be part of the MND Association, a charity which takes a leading role in the global fight against MND - Driving MND Research - by funding research, facilitating collaboration and raising vital awareness.


Sue, Malcolm and Anne met outside Norwich City Hall at 9pm where they were joined by a small number of supporters and Norwich City Councillors. We kept to a small gathering in the light of the pandemic, and managed to stay socially distanced by households. We would like to thank everyone who joined us. Read more here.


Global Awareness
Left to right: Malcolm Chubbock, Cllr James Wright, Zara Last, Ben Wilson, Cllr Caroline Ackroyd, Terry and Cllr Julie Brociek-Coulton, Dokyung Kim, Dahye Yoon, Tracey Gambell, Anne Gillett and in front Lisa Wilson with Callisto.
Global Awareness
Left to right: Malcolm Chubbock, Zara Last, Ben Wilson, Cllr Caroline Ackroyd, Cllr James Wright, Terry and Cllr Julie Brociek-Coulton, Dokyung Kim, Dahye Yoon, Tracey Gambell, Sue Heal and in front Lisa Wilson with Callisto.


Saturday 15 May 2021 Morrisons at Bradwell store near Great Yarmouth


Sue Heal can be seen collecting a bucket of cash from Morrisons Bradwell Community Champion Cam Hodds. We would like to thank Cam for working with our branch and helping us to raise a total of £22.88.


COVID-19 meant that we were not able to hold the usual style bucket collection instead buckets were left at the ends of the till points. It was an excellent opportunity to raise awareness of motor neurone disease and the work of the branch.


We also trialled the use of the Text to Donate poster designed by Mili, which you may have seen on our Facebook page and on Twitter and reproduced here.


Every penny counts; we are grateful for the generosity of those who were able to donate.


If you missed this bucket collection you might be able to catch us in the summer when we are hoping to hold another collection sometime in late June or July.







New for 2021

The Norfolk, Norwich and Waveney Branch has joined with the King’s Lynn Support Group to launch an Instagram account. If you have an account you can find us @MNDNorfolk or simply click the Instagram symbol at the top of the page.


With thanks to Mili and Constantina, Social Media Coordinators for the Branch and Group respectively for setting up and posting new content.