Norfolk, Norwich and Waveney Branch



News archive - 2017



The branch publishes Fightback, our newsletter, three times a year. Its contents include reports of recent events, notice of future events in aid of the MND Association, a thank those who have raised or contributed funds for the work of the branch and news from National Office.


Sainsbury's bucket collection 15-17 December 2017

Thank you to everyone who held a bucket during our pre-Christmas collection - we had a team of 20 collectors so that for most of the time we were able to have someone standing at both entrances. It did get a little chilly on occasions, but everyone kept smiling. Although some hours were very quiet, others were extremely busy. Many people gave generously and together we raised £1,374.33. It was also good to raise awareness and to engage in conversation - often with people who had seen at first hand the effects of motor neurone disease on a family member or friend.


Thank you to the staff at Sainsbury’s who made the collection possible, and to all the customers who supported us.


Friday 1 December 2017 Coffee and Cake Morning in support of the MND Association and Bloodwise

MND and Bloodwise

Two local sisters, Jill and Valerie (nee Basey-Fisher), held a coffee and cake morning in memory of their two brothers Ian and Bernard Basey-Fisher at Blofield Court House. Ian passed away in 2013 after living with motor neurone disease for many years and, more recently, Bernard passed away suddenly this year having suffered from leukaemia.


The event went extremely well; people were very generous and together they raised £1,450 to be split between the MND Association and Bloodwise.


Thank you to everyone who supported the event, and to Shirley who sold merchandise for the Association raising £264.57.


Malcolm Chubbock took the photo showing from left to right Shirley Bassey-Fisher, Tony Baker, Victoria Reek, Jill Nursey, Malcolm Nursey, Lori Baker and Valerie Baker.


The event raised awareness of motor neurone disease and leukaemia with a splendid article in the EDP on 30 November.


Saturday 18 November 2017 Christmas Craft Fayre

Thank you to Pat Goose who organised the Fayre and to all her helpers; thanks too to Judy Burns-Thomson who provided information about motor neurone disease on the day. Julia Beales at the Association provided much appreciated support behind the scenes. There was a good selection of stalls including handmade chocolates and sweets, arts and crafts, face painting, refreshments and cakes. Lots of people attended – including Father Christmas, and someone commented that the event 'was brilliant', which is always a lovely thing to hear! We are grateful to everyone who attended and helped raise a brilliant £400.


Sunday 19 November 2017 Wortwell Open Meeting

Fifty-four people attended, including people living with motor neurone disease, carers, those bereaved by the disease, volunteers and health care professionals. We were pleased to see some new faces and have the opportunity to catch up with those we hadn't seen for a while. There was a lovely atmosphere and it was good to see people standing around chatting before the meal, and then in groups at the tables. We formed the impression that the meeting had enabled people to share experiences, make friends and offer mutual support.

Our thanks go to Dr Mohammad Rafiq, Consultant neurologist at the Norfolk Care and Research Network based at the Norfolk and Norwich University Hospital who gave us an informative talk. For those who would like to hear it again or missed it the first time, it can be viewed here on YouTube. Dr Rafiq has kindly shared the powerpoint slides that accompany his talk. We were also pleased that Helen Copsey, MND Coordinator was able to join us. I think we all appreciate their willingness to give up their own time to support us.


The event was part paid for by the Community Cash 2017 Fund. People kindly gave feedback for the interim report, which was accompanied by a selection of photos taken at the event.



Tuesday 3 October 2017 Heritage Wills Golf Day

Malcolm attended prior to tee-off on the Golf Day to talk with people about motor neurone disease and the work of the branch. Money was being raised to support the Motor Neurone Disease Association, East Anglia's Children's Hospices and the East Anglian Air Ambulance. Fourteen teams of four people entered the competition paying £250 per team. We look forward to hearing a little more about how the day went and how much was raised for the branch.

Tracy - Silence Speaks


Tuesday 3 October 2017 Tracey's Silence Speaks at Sainsbury's, Queens Road, Norwich.

Tracey was asked to take part in the Silence Speaks event as she enjoys talking with her customers, many of whom are regulars. Her till was beautifully decorated, the noticeboard that we are using displayed information on speech aids and the difficulties of losing speech. The collection continued on Thursday 5 October.


We are delighted that Tracey raised £675. Thank you to all those who gave so generously - and to Tracey for keeping quiet!


Sunday 17 September 2017 Tour de Norfolk

Danny Allen, completed the 100 mile bike ride in memory of Peter Warnes. So far he has raised £100 towards his target of £150.


Saturday 16 September 2017 Never Lose Hope Charity Ball, Zurich

On 16th September a Charity Ball was held in Zurich, organised by Hannah Chippendale whose father is suffering with MND. The Never Lose Hope Charity Ball was great success with support from several international companies, including Norfolk’s own Willow and Pearl.

The Silent Auction alone raised over 7,000 CHF and the Raffle over 2,000CHF with the total, including proceeds from the ticket sales, reaching 12,621 CHF. A JustGiving page was also set up for those who couldn’t attend but wanted to support. This reached a total of £6,100, we have now heard that the total raised was £15,488!


As well as raising much needed money it also raised a huge amount of awareness for the disease and the UK charity, with a hugely international crowd attending. Hannah has requested that the funds raised be split 50/50 between research projects and the Norwich and Waveney branch, which has been so invaluable to her parents.


A huge thank you to everyone who contributed to the success of the Charity Ball, especially to Hannah!


6 August 2017 Run Norwich

Morgan Warnes
Morgan Warnes
Morgan Warnes

Morgan Warnes completed her 10k run in 1 hour 13 minutes and raised £504 for the Branch.


Robert Jones and Phillip Laurier completed the run, in 55 minutes 36 seconds and 1 hour 11 minutes and 24 seconds respectively.


We would like to thank them all!








Sainsbury's bucket collection 4-6 August 2017

The collection was timed to mark the official launch of our partnership with the Queens Road Branch of Sainsbury's as their local charity of the year. On Thursday evening Sue took balloons and banners to the store. Tracy Galer and a team of willing members of staff made light work of blowing up 36 balloons and using them to decorate the security gates and tills. The banners were posted around the store, and collecting tins were put on some of the tills and in the café – it would have been hard to miss us! A table was placed in the main entrance beside the Branch 'spring roll' where we were able to display literature helping us raise awareness of MND and the role of the Association and our Branch.


The balloons and plastic banners!


Helen Morris, Sue Heal and Malcolm Chubbock


On Friday evening, Helen Morris joined Malcolm and I in some photos to be used to publicise the event.


Thank you to all the volunteers who spent time collecting over the three days, to Tracy and Helen for their work behind the scenes, and to members of the public who once again generously donated to raise £767.64. Thanks also to those who visited the Petrol Station and donated £177. A special thanks to John on security who looked out for our well-being, to Piotr who repaired the 'spring roll' when it collapsed, and to all the members of staff who supported us so well.


Friday 4 August Heritage Will Writers

The Heritage Will Writers team raised £184.50 to support the Norwich and Waveney Branch by participating in an MND "Bake It" day. The cakes looked fabulous on their Facebook post. Thank you to everyone who baked – or ate cake!


Wednesday 26 July Charity Quiz

Jo Fuller organised a pub quiz at the Avenue Pub, Great Yarmouth in support of the MND Association. Entry was £3 per team member with a maximum of six per team. The place was 'absolutely rammed' which was a good thing! There were six teams who were subjected to two rounds of 20 general knowledge questions followed by 'Play Your Cards Right' with Colin (her other half). The winning team were called the Pickled Egg Heads, they won a carvery voucher each for the pub. Branch Member Ann Franklin and Association Visitor Colleen Alp each attended with their teams. The event raised £210, with a further £50 coming from a raffle.


And after all her hard work Jo said, “We need to do this again it was really good fun.”


Sunday 23 July Open Garden and Flamenco Show

Rod and Thelma Pointer hosted a garden party at their home in Clippesby jointly with a 'Flamenco friend' to support the MND Association and Cancer Research. Guests enjoyed live Flamenco music and dancing by Sueños Flamencos, the plant sale, up-cycled crafts and raffle, tea and cake – and of course the garden! Fortunately the sun was out except for one shower when people just stayed and put up umbrellas, which soon came down again.


The garden party raised £777.27 and cheques for £388.65 each have gone to Malcolm, for use by the Norwich and Waveney Branch, and to Cancer Research. Thelma's friend, Bridget, has now reached her target of £5000 for Cancer Research!


10 July the Norwich and Waveney Branch of the MND Association was announced local Charity of the Year 2017/18 by Sainsbury’s, 1 Brazen Gate, Norwich (otherwise known as the Queens Road store).

Voting took place online and in-store between 12th and 25th June. Thank you to everyone who voted for us. We are happy to announce that we learnt today that we have been selected by Sainsbury’s Queens Road store as their local Charity of the Year 2017/18. We are looking forward to using this opportunity to raise awareness of Motor Neurone Disease, the work of the Association and our branch, and to raising funds together with the staff at Sainsbury’s. Look out for our posters appearing in store over the next few weeks.


Sunday 2nd July Charity Family Fun Day

Everyone was made welcome at the Norfolk Freemasons' Family Fun Day with Teddy Bears' picnic at Wymondham Rugby Club. Dave Swift a member of St. Winnold Lodge No 3955 had invited Jane Lewis, of the King's Lynn and West Norfolk fundraising group, to host a stall. In turn Jane invited Malcolm and Sue to help raise money, through the sale of MND Association merchandise, and awareness of MND. In keeping with the theme of the day we had a 'Guess the Name of the MND Association bear'. Dave was very good at encouraging people to take part and by mid-afternoon we had filled the board and were ready to announce a winner. When a name was drawn we learnt the bear was named Little Ted; the winner was delighted!

Family Fun Day


The weather was glorious – ideal for a picnic! There was a lovely atmosphere and we enjoyed the event. We raised £79.16, there is a chance that we will get another small sum from the gate takings which will be shared amongst all of the charities taking part on the day. Over 60 Lodges with 80 stalls were taking part and all the proceeds were going to Norfolk charities!


The photo taken on the day shows from left to right, Malcolm Chubbock, Sue Heal and Jane Lewis.


We would like to thank Ashley Swift for permission to use his photo.


Sunday 2 July Outlaw Half Holkham.

Lucie Gillett completed the triathlon that includes a 1.2 mile swim, 56 mile bike ride followed by a 13.1 mile run – three loops round the Holkham estate - in 7½ hours! Lucie took part in this half iron man in memory of her father Frank Gillett who died from MND, he would have been very proud to have seen her reach the finish. You can see a photo of Lucie at the finishing line on


Lucie has now raised over £4,000 (including gift aid) to be split between the MND Association for research and the Norwich and Waveney Branch. The latest addition to her fundraising was a cheque for Lucie’s chosen charity of £1,000 from The Dorothy Holmes Charitable Trust, Charity Number 237213. Well done Lucie - we are in awe!


28 June 2017 Sheringham County Primary School and Nursery

Sheringham School
Sheringham School

We were delighted to receive a cheque for £743.50 raised at the school's mufti day on Friday 26 May when children paid £1 each for their choice of non-uniform attire! They also held an end of term coffee morning with cakes raising further funds for the MND Association.


Gill Newton, Association Visitor with the Norwich and Waveney Branch, attended their assembly together with Alec Burrows. Both Beth, who suffered from MND, and her husband Alec were teachers at the school. The first photo shows Alec, with Gill’s support, reading a special message written by Beth. (Beth died peacefully on 26th August 2017). The second photo shows Alec (in the centre) receiving the cheque together with Gill (on the right) from Headteacher Susan Brady. A big thank you to everyone involved! Our thanks too to the member of staff who took the photos for us.


Wednesday 21 June Global MND Awareness Day Norwich City Hall lit up in Blue and Orange!

In May, Sue Heal wrote to Laura McGillivray, Chief Executive Officer of Norwich City Council asking if she could help us celebrate the decision by Norfolk County Council to support the MND Charter. The answer was yes! We are very grateful to Lewis Cook who was in charge of lighting - we thought the building looked splendid (even with the scaffolding).


The next step was to invite the Norwich City Councillors. We were delighted that four Councillors made the time to join us, and that many who were unable to attend emailed messages of support. Cllr Alan Waters, leader of Norwich City Council, agreed that Norwich City Council would support the MND Charter. Stuart Anderson, Senior Reporter with the EDP, agreed to meet us at 8pm. He chatted with us all whilst we attempted to attach our banner to the building, then interviewed Alan and Sue. His report can be read here:


Blue and Orange 2
Blue and Orange

The first photo shows from left to right Cllrs Julie Brociek-Coulton, James Wright, Caroline Ackroyd and Alan Waters in the back row, Malcolm Chubbock, Judy Burns-Thomson, Louisa Hopson and Sue Heal in the front row (thanks to Jo for taking the photo). The lights were not too exciting at 8pm on the longest day of the year, but were very impressive when we returned to take photos at 10pm.


June 21 was chosen by the International Alliance of MND/ALS Associations as Global MND Awareness Day because it marks the summer solstice, a turning point, and each year the Global MND/ALS community undertake a range of activities to express hope that this day will be another turning point in the search for a cause, treatment and cure of MND/ALS. This year a number of buildings around the country were lit up in blue and orange, the MND Association colours.


Wednesday 21st June Notcutts Coffee Morning

This year our MND Association Awareness Month campaign focused on the eyes and how for some they might be the only part of the body unaffected in the latter stages of the disease. Whilst our posters were on the London Underground, National Rail network and buses during June across England, Wales and Northern Ireland it was especially good to see one at Norwich Railway Station!

We thought it might be nice to add our own photos, and in this way contribute to this year's MND Awareness month. The people behind the eyes are a mix of people with MND, carers and volunteers all attending our coffee morning and each with their own story to tell. I think we all agreed that it would be wonderful to live in a world free from MND – but, in the meantime it is important that we continue to support all those affected by the disease both past and present.


Wednesday 21st June Annual Cricket Match supports MND by James Skilleter

This year the friends of Richard O’Flaherty XI were well beaten by a strong Ashby side in a T20 match in Ashby St Mary, on Wednesday 21st June. Ashby batted first and scored 161, where the friends XI could only manage 100 in reply. Match fees and a raffle followed the game which raised £242. Photo to follow.


Sainsbury’s bucket collection 15-18 June 2017.

Thank you to everyone who helped collect during Thursday 15 June to Sunday 18 June. We are also very grateful to those who donated large and small amounts, together they totalled £1,259 - a splendid result. The money will be used to support people living in our area who are affected by MND.


Many people stopped to share their stories of friends and family affected by MND. If you have been affected in any way and would like to be in contact with the branch please click here. If you, a friend or family member have been diagnosed recently please get in touch - we are here to support you.


Our thanks also go to the Brazen Gate branch of Sainsbury’s in Norwich for giving us the opportunity to raise funds for the branch and awareness of MND. Thank you to all the staff who made us welcome and helped in any way.


Linda Tipper

Saturday 24th June Vintage Tea Party

Linda Tipper hosted a tea party at her home in Lowestoft with the help of friends and family.


The event included cream teas and delicious cakes, craft stalls, live music with local DJ, a children’s entertainer from 5pm and a brilliant raffle. The event was well attended with lots of children running around having a wonderful time!


Sheree Page, one of Linda's carers, completed a skydive on Sunday 28th May. She raised £505 for the MND Association.


The photo shows her presenting the cheque to Linda at the tea party. Our thanks to Sheree for her bravery and fundraising!


Friday 16 June 2017


Malcolm Chubbock was invited to Beactive Mobility Limited Magdalen Street, Norwich on 16 June. The photo shows Keith Lebbell presenting him with a cheque for £1,472.33.


The money was raised at a very successful event at The Talk, Norwich, on 13 May. Around 300 people attended and were entertained by a wide range of music played by Keith's band Wypeout, The Glamtastics and Low Rider. Malcolm and Jo were there to represent the Norwich and Waveney Branch, raise awareness and sell MND Association merchandise.

A huge thank you to everyone who attended and helped make this such a great evening. Eastern Daily Press article



Sunday 11 June 2017 Heritage car boot sale

Heritage Car Boot
Heritage Car Boot

Heritage Charities were pleased to report that they had a great day and made a fantastic £140.


They had several visitors whose friends and family had been affected by MND, which spurred them on.


They added the takings to the amount they have already raised for the Norwich and Waveney Branch.

Friday 9 and Saturday 10 June 2017 5th Morley Beer Festival and Fun Day

Beer Festival
The branch stall with Sue, plants kindly donated by Morley Nurseries Ltd.
Photo taken by Corinna Pharaoh


We were delighted to be one of the charities nominated for support and received a cheque for £100.


The event was sponsored by David Morter Garage Services and Victoria Marquees with additional support from many others.


Sue was invited to the opening on Friday attended by Wymondham Mayor, Robert Savage, and Attleborough Mayor, Jeremy Burton who pulled the first pints; there were over twenty real ales and ciders! Corinna Pharaoh and team invited the branch to host a stall on the Saturday.


The Morley team helped Sue and Penny set up the gazebo on a bright sunny but very windy morning, they were grateful for the assistance – and the coffee that appeared at just the right time. They enjoyed the live music, wonderful atmosphere, and talking to lovely people - whilst hanging onto the gazebo! Eastern Daily Press article


Saturday 3 June Notcutts bucket collection

We are very grateful to Richard Greenacre for allowing us to hold a bucket collection at Notcutts Garden Centre. Thank you to all the willing volunteers who stood with buckets, and to those who generously contributed. We were delighted to raise £387.04 (plus a few €), a really good sum from one day!


Monday 15th May 2017

Keith Hood, Malcolm Chubbock and Antony Wiles
Cheque presentation

On Monday 15h May, Malcolm Chubbock attended a social event at the Tyneside Club, Sheringham where he was presented with a cheque for £2,266.30 by the Crome and District Lodge of the Royal Antediluvian Order of Buffaloes.


Keith Hood nominated the Norwich and Waveney Branch of the MND Association to benefit from fundraising. A fellow buffalo, John Nicholls, died from MND in 2008.


The branch received half the proceeds whilst an equivalent donation went to the Reading Branch of the MND Association where another friend lived with MND.


The money was raised through parachute jumps with Scruffy the bear, garden parties, coffee mornings, social events and raffles. Thank you to everyone involved.


Saturday 13th May 2017 at The Talk

Jo at stall
The stall

Jo and Malcolm represented the branch at a very successful evening of music at The Talk in Norwich on Saturday 13th May. They sold merchandise, and raised awareness of MND and the work of the MND Association locally. Malcolm spoke about the work of the branch.


The event attracted over 300 and featured three bands, Lowrider, Wypeout and Glamtastics, playing a variety of music. Pat Nearney (local comedian) compèred the evening. The bands raised money from ticket sales, an extensive raffle with around 60 prizes and an auction – the highest amount raised was £600 from the sale of a guitar signed by several pop groups including the Searchers.


The money is being split equally between the MND Association Norwich and Waveney Branch, Royal National Lifeboat Institution and the East Anglian Air Ambulance. Keith Lebbell, who had nominated our branch in memory of his godmother, tells us that our share will be around £1,400.


We look forward to the cheque presentation at Beactive. Dave Smith, Managing Director, was pleased to support the event and help pay the costs so that more of the money could be donated to the charities.



1st May 2017 MK Marathon

Phillip Laurier completed the Milton Keynes marathon in 5hrs 30 in support of the Branch.



2nd April ASICS Greater Manchester Marathon

Peter Smith
Peter Smith

David and Cathy Smith's son in law Peter ran the Greater Manchester Marathon, known for being a super fast course, and raised £562 for the Norwich and Waveney branch of the MND Association.


We are very grateful for his efforts on our behalf.


Peter wrote on his 'BT mydonate' page that he needed the sponsorship to keep him motivated through 7 weeks of madness as he began training on 19th February.


It seemed to work!





27th March Wymondham Lions

Sue Heal was invited to give a brief talk about the MND Association and the work of our branch to the Wymondham Lions. She was made very welcome. We are most grateful to them for donating £200 to assist us in our support of people living with MND and carers.



24th February 2017 Heritage Quiz and Chips Night

The first fundraising event organised by Heritage Charity Committee raised £150. Karen Francis of Heritage Wills, Hellesdon, said, “It was great to have Penny and Malcolm on our team and a fun night was had by all”. She didn't tell us if their team won!!


They have other events planned such as bakeit!, a car boot sale, a golf day and are trying to source a venue for a Walk to d’feet. Their fundraising year will finish with a Christmas Bingo, followed by a cheque presentation soon after. The details will be added later.



Bryan Chubbock

Life of Bryan (with a Y) - Bryan Chubbock, a retired Tivetshall Farmer, released his autobiography with proceeds going to the MND Association!

Bryan and Eileen Chubbock, parents of our Chairman Malcolm, have been attending branch open meetings and supporting the branch since it began in April 1995. Their eldest son John was diagnosed with MND in 1993 and died in 1997. The book documents Bryan's life in farming, and includes stories from the 1940s when he and Eileen started running Walk Farm. We are delighted that he has chosen to donate the proceeds of the book to the branch. It costs £8 and can be purchased directly from Bryan by phoning 01379 676272. Alternatively contact Malcolm by email. Read more here.