Norfolk, Norwich and Waveney Branch





Text Donate

Donating to our branch is now easier than ever. With our new Text to Donate function you can support our branch at the click of a button.


Simply text MND4NNW to 70085 to send an automatic donation of £5. If you wish to donate more, add a space and the amount you wish to give e.g. ‘MND4NNW 10’. Texts cost £5 plus one standard rate message.


Your donations mean that we can continue to support local people living with MND. Around 70 people are typically living with this devastating disease in our branch area at any one time and need our help.


Every donation is truly appreciated by all members of our branch. Thank you.



Knit Twist Headbands

Elizabeth will be making knit twist headbands over the coming months to raise money in aid of the Motor Neurone Disease (MND) Association, in honour of her Grandpa, Larry. She said, "I like the twist, it represents experiencing hard times and making it to the other side."

Purple Headband
Purple Headband
Blue Headband
Blue Headband
Black Headband
Black Headband

If you would like a headband, please contact her at with your head size (tape measure, CM or Inches, above the eyebrows and ears).


A range of colours are available - red, blue, cream, black and olive green. Mustard was a popular colour, if there are several orders for mustard she will order more yarn.


The cost is £9 plus postage and packaging.


Committee Member Anne takes on a new challenge Step Forward this January to raise money for the Norfolk, Norwich and Waveney Branch

Every January the MND Association promote their #TakeoverMND Campaign to challenge people to raise awareness and funds. A new challenge for 2021 is Step Forward - a pledge to walk or run 300,000 steps in 30 days. One of our branch committee members Anne said, "This seemed to be just the challenge I needed in lockdown enabling me and my partner to enjoy our daily exercise and a challenge in memory of my husband,Frank, who sadly had MND and died ten years ago in February. I will be walking to raise funds for the Norfolk, Norwich and Waveney Branch." If you would like to join Anne and take up the challenge you can register here. Anne is collecting donations on our Winter Walks JustGiving page.


Norfolk, Norwich and Waveney Branch committee and supporters take A Winter Walk


Join us on a Branch fundraising event - everyone is invited to take part - alone or as part of a socially distanced group in line with local government guidelines. Anne Gillett was the first to start our virtual event when she walked nearly 11 miles during the last weekend in November. Sue Heal and Jo went next taking a walk on Saturday 5 December. We are waiting to hear when the other committee members plan to take their walks. There is still plenty of winter left if you would like to join us virtually in the New Year!


We hope family, friends and supporters will join us in a virtual walk - just tell us when you plan to walk and share our JustGiving page if you are able to gain sponsorship for our collective effort. Even if you decide that walking is not for you perhaps you can share the link and seek donations on our behalf.


We look forward to sharing stories of your winter walks and approximate distances covered. We are very much hoping that between us we can reach a target of £1,000.


Thank you in anticipation of your help and support.


Emergency appeal for donations


As our normal fundraising activities have been rather curtailed by Covid-19, we have set up a Justgiving emergency appeal to enable us to continue supporting people with Motor Neurone Disease.


You can donate, if you would like to, by clicking this logo:


Making a donation


Please contact our treasurer Trish Bates.
Alternatively people may wish to donate directly online in which case please make a note in the comments box if you would like this money to be forwarded to the Norfolk, Norwich & Waveney Branch.


Gifts in memory of someone special


A number of families have been very kind and asked for donations in memory of a loved one to be made to the Norfolk, Norwich & Waveney Branch. If you would like to consider this please contact Trish Bates.
Alternatively people may wish to donate directly online


A standard Gift Aid form is available to complete and submit online on the MND Association website.



Leave a gift in your will


We rely on voluntary donations, and gifts left to us by our supporters in their Wills (legacies) form a part of this income. This is best done through the MNDA National Office with a request, if you are happy with the idea, to ask for the funds to be directed to the Norfolk, Norwich and Waveney Branch.




A wide variety of events are held throughout the year. Your help is always very welcome. If you would like to give some time, share some ideas, run an event or take part in a challenge we'd love to hear from you. This year, 2019, the branch is anticipating holding more bucket collections, if you are happy to hold a bucket for an hour or two we would love to hear from you - we will then contact you as and when dates for collections are finalised. Contact us



Silence Speaks

Silence Speaks


… sign up as an individual, team, school or workplace and raise funds and awareness for your local branch or group in OCTOBER this year!




To find out more visit to register for your pack or contact us at


Supporters raising funds for the MND Association


Zoe Anderton's harp CDs - a percentage of sales go to the Motor Neurone Disease Association

Zoe Anderton has recorded some harp CDs and is raising money for the MND Association, donating 25% of the sale price of her debut CD. She has agreed to donate 50% of the proceeds of her recent CD, A harp full of love, to the Association. She began raising money in memory of her friend David, a Norfolk musician who died of MND in 2014. David was a member of our Branch and raised funds for us with a Round Britten quiz, reflecting his musical interests! Details on how to order the CD can be found here or you can view her Facebook page


David Banks is raising money for the MND Association

David Banks has created some fascinating books and booklets about a golden era on the Norfolk and Suffolk Broads. More details of all of his titles can be found here. You can follow the link to Buy UK Books if you would like to purchase any of David’s books.




Bungay & Waveney Golf Club supported the Norfolk, Norwich & Waveney Branch as their Charity of the Year for 2018. They held a Charity Tournament on 7 September 2018. Throughout the year they raised an amazing £8,600. You can read more on our News 2019 page where we report on Steve and Belinda’s cheque presentation at the AGM on 7 April 2019.


Sainsbury’s Queen’s Road, Norwich - the Norfolk, Norwich and Waveney Branch was voted local charity partner of the year which ran from July 2017 to June 2018. We thank the management and staff for their support helping us to raise funds and awareness of motor neurone disease. We are very grateful to Tracy Galer and Helen Morris who liaised with the branch, organised the dates for bucket collections and arranged payment of the sums collected to be credited to the Branch Account. Special mention should be made of Tracey Snelling for her Silence Speaks event in October 2017 which raised £675 and for raising the profile of Global MND Awareness Day 2018 when she dressed in blue and orange on 21 June and raised a further £160 both from a bucket collection on her till and by selling cakes in the staff canteen.


Heritage Will Writers' charity committee supported the MND Association throughout 2017.


Thank you to the managers of the Duke of Wellington on Waterloo Road, Norwich, NR3 1EG who put MND Association collection boxes in their pub from September 2015-16. They raised £625, read more on page 4 of the February 2017 edition of Fightback.


During 2014 North Elmham Young Farmers, raised funds for the local Branch of the MND Association.


The staff organisation at the Norwich Branch of M&S chose the MNDA Norfolk, Norwich and Waveney Branch as their charity of the year during 2014. This meant that the proceeds of any staff fundraising were donated to our branch.


The Lions Scooter Club of Norwich made our local branch of the MNDA their nominated charity for 2014.


The Factory Shop, Harleston nominated the Norfolk, Norwich and Waveney Branch of the MNDA as their Charity of the Year from August 2014-July 2015. Thank you to David Bryant for arranging this sponsorship.





A 2020 Christmas gift to support the work of the Norfolk, Norwich and Waveney Branch of the MND Association from the Trustees of the Paul Bassham Charitable Trust.


The Branch has been supported by Norfolk Community Foundation through Paul Bassham Community First Revenue Fund. We are very grateful to the Trustees of the Paul Bassham Charitable Trust who approved a generous donation of £5,000 to the Norfolk, Norwich and Waveney Branch of the Motor Neurone Disease Association. The money, received in November 2020, will be used to help fund our support for people living with motor neurone disease, their carers and family.


Malcolm Chubbock, Branch Chair said, "Local people with motor neurone disease turn to the Branch for advice and support. In addition to the emotional support provided by our volunteers we have been able to support people with financial grants to help improve their quality of life and to provide equipment that is not available through the NHS. After a very challenging year this is a very welcome boost to our funds to enable us to continue supporting people facing this devastating illness.”


Norfolk Community Foundation is an independent, registered charity that bridges the gap between those in need and those who can help. As part of a national movement of Community Foundations, Norfolk Community Foundation is working together with local philanthropists to make a difference to lives in Norfolk


The CAF Tourle Foundation Fund 2019

We are grateful to The CAF Tourle Foundation Fund which has approved a generous grant of £2,149.35 to the Norfolk, Norwich and Waveney Branch of the Motor Neurone Disease Association. This is specifically to enable us to pay the costs associated with our Open Meetings and Coffee Mornings.


The conditions of the grant are that we should maintain records as evidence of holding the meetings which include attendee lists, photographs etc. As usual when taking photographs we will display a sign which asks you to notify us if you would prefer not to have your photo taken and to wear a small orange sticker on your name badge to remind us!


The grant has already funded the cost of holding our open meeting at Wortwell, and the first four coffee mornings held in January and February 2020. Following the suspension of our face to face meetings earlier in 2020, in line with Government guidelines and advice from the MND Association, we were extremely relieved when we were advised that we could hold the remainder of the grant until our in person meetings could resume.


Jarrold Trust

The John Jarrold Trust.

The branch committee is very grateful to Caroline Jarrold, Secretary to the John Jarrold Trust, and the trustees for their consideration of our application for a grant at their June 2018 meeting. We received a further donation of £500 in support of the ongoing work of the Norfolk, Norwich and Waveney Branch of the MND Association.


Jarrold Trust

The John Jarrold Trust.

The branch committee is very grateful to Caroline Jarrold, Secretary to the John Jarrold Trust, and the trustees for their consideration of our application for a grant at their January 2017 meeting. We received a donation of £1,000 in support of the ongoing work of the Norfolk, Norwich and Waveney Branch of the MND Association.


Comic Relief Community Cash Fund 2017

We are delighted and very grateful to be the recipients of a £1,000 grant from the Comic Relief Community Cash Fund 2017, via the Norfolk Community Foundation. This money will be used to fund three open meetings – the first being held at Wortwell on 19 November 2017.



Our fundraising promise


You will undoubtedly be aware of the recent media coverage of fundraising practices in the charity sector. The Association does not use any of the organisations at the centre of these allegations. Douglas Graham, Director of Fundraising, has outlined our fundraising promise to reassure everyone who supports the MND Association about the high standards we strive to ensure are integral to all our fundraising activity.

  • We make sure we comply with all aspects of charity law by rigorously adhering to the Institute of Fundraising Code of Practice and the legislation on data protection
  • We do not undertake any cold calling
  • We do not share the details of our supporters with any other organisation
  • Should you wish not to receive fundraising communications then all you have to do is tell us and we will make sure you are no longer contacted in this way. All our fundraising communication contains this option to opt out
  • We receive very few complaints, but when we do we take them very seriously, investigate them thoroughly, report them to our Board of Trustees and take appropriate action
  • We are especially careful when communicating with people with MND who are also supporters
  • Finally, and probably most importantly, the MND Association is part of the MND family and our most important value is putting people with MND, their families and carers at the heart of everything we do. Everyone in the MND family wants a world free from MND and at the Association we want donating, fundraising, and supporting the MND Association in any way to be a positive experience so we will always treat supporters fairly and with respect, and would never intentionally see to pressurise them in to giving.

Thank you for your continued support. It is only because of you that we can fund research, provide care, campaign and raise awareness. We will never forget that.


If you have any questions please contact our Fundraising Team on 01604 611860 or email