MND Association. Norfolk, Norwich and Waveney Branch

MND Connect

 

Accredited Site

Branch support services

 

 

The Norfolk, Norwich and Waveney Branch offer a range of support services. If you would like to know more about how we may be able to help you or someone you know, please do not hesitate to contact us.

 

Association Visitors

 

The Norfolk, Norwich and Waveney Branch provides practical support through our team of Association Visitors (AVs). AVs are local volunteers who have undergone a thorough training programme. They often visit people in their own homes, or can have contact over the phone or via e-mail, whichever seems more appropriate. They are friendly people who will provide support, advice and encouragement. If you would like to be supported by an AV please contact us. Alternatively we can receive referrals from the Neurological Nurses or the Regional Care Development Advisers.

 

Click here if you would like more information about the role of AVs.

 

Support Meetings

 

Open Meetings are held three times a year. These are open to anyone with an interest in MND, and are a time for meeting and socialising with those living with MND as well as those involved with helping and supporting them. A meal is provided free of charge. We take care to provide a meal that is easy to manage for those with MND and, in our invitation ask people to advise Helen Devlin of any dietary requirements. These meetings are an opportunity to chat and exchange information and ideas. Where possible we try to find a speaker to give a short talk on an issue of relevance, for example Personal Independence Payments. There is usually one of our local neurological nurses in attendance. We are often joined by one of the Regional Care Development Advisors and a volunteer Care Services Navigator.

 

Coffee Mornings are held twice a month in each of two venues - except in December. These tend to be smaller more informal functions, at easily accessible venues, with the intention that people can drop in for as much or as little time as they like either to socialise, exchange ideas or ask for specific advice. There is no agenda, but hopefully a chance to sit and chat over a cup of tea or coffee (people usually pay for their own). Current carers, people who have been carers and people with MND are very welcome to attend. If people feel this may be of interest they can just come along on the day.

 

The venues we currently use are Notcutts Garden Centre cafe in Norwich, and Cherry Lane Garden Centre in Fritton near Great Yarmouth. Please see the upcoming events section for details of the next planned coffee morning.

 

Equipment

 

The branch can help with the sourcing, supply or loan of specialist equipment. Recent requests to the branch have included help towards funding a powered wheelchair, a contribution towards the cost of respite care, contribution to the cost of home adaptations, funding for software to enhance communication, provision of an iPad to aid communication, installation and rent of a stair-lift, rent of a battery pack to power a non-invasive ventilator. In all that we do we are guided by the following principles from National Office: an MND Support Grant may be awarded where a need has been assessed by a health or social care professional and /or support would improve the quality of life and where one or more of the following applies:

We would like to thank all those who raise money for us to help fund these vital provisions.