MND Association. Norfolk, Norwich and Waveney Branch
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For Professionals



Support for Health & Social Care Professionals


The MND Association produces a very wide range of publications including leaflets and comprehensive guidelines on aspects of care management all of which are available here or to order by post by contacting the MND Connect team on 0808 802 6262.


The branch plays an active part in liaising and networking with health and social care professionals aiming for the best possible care for people with MND. Our initial goal is to publicise the events being hosted by the Motor Neurone Disease Association in East Anglia.


MND is a relatively rare disease so it is important that the branch supports extra training and education about MND care for health and social care professionals.


The forum for health and social care professionals closed on 24 January 2018 and has been replaced with a question and answer section in the Education Newsletter. You can sign up for the newsletter by following the link on this page.


Red Flag Diagnosis tool:

The MND Association has been working with The Royal College of General Practitioners on an early diagnosis of MND and a new Red Flag tool which will help reduce inaccurate referrals and therefore reduce the time to diagnosis.


You can download the Red Flag diagnosis tool here:


Just in case kit.

Just In Case Kit

We’re pleased to announce the launch of the updated Just in Case kit which is designed to hold medication that may be needed if a person with MND experiences a sudden change in symptoms such as breathlessness, coughing or choking.


Just in case kit 2016The kit must be ordered from MND Connect by a GP who will prescribe medications to be kept in the kit. The box has two sections: one for medications that can be used by a doctor or nurse, and the other for medications that can be used by a carer.


For more information click here:



Augmentative and alternative communication for MND


Best practice for professionals - follow the link for a range of information.


Complex cases can be referred to Communication Aid Service, East of England. This flyer shows the area covered by the service and criteria for referral.



Upcoming events for professionals


16 May 2018 MND Advanced Level Study Day

A partnership between the MND Association & MND Care & Research Centres: Norfolk and Cambridge, Papworth Hospital, UEA.


Keystone Innovation Centre, Croxton Road, Thetford, Suffolk, IP24 1JD

Wednesday, 16th May 2018 – 9.30 – 3.30 pm

  • Aim: For professionals with a working knowledge of MND; to provide an opportunity to reflect and consider issues of management in more detail. To reflect on key issues that arise and how to address these in a timely and sensitive way

  • To include: Brief overview of MND & research, symptoms and when to refer for specialist support, promoting independence and enablement, the impact on family members, a personal perspective.

  • Who should attend: Health and social care professionals supporting a person affected by MND who have a pre-existing working knowledge of the disease and would like to reflect on best practice.

Registration fee: £25 for early bird bookings (until 20th April, thereafter £30 for later bookings). Closing date for bookings 8th May. Register here


Programme available here.