Norfolk, Norwich and Waveney Branch



News 2020


June 2020

February 2020





The branch publishes Fightback, our newsletter, three times a year. Its contents include reports of recent events, notice of future events in aid of the MND Association, a thank those who have raised or contributed funds for the work of the branch and news from National Office.


Sunday 21 June 2020 Global MND Awareness Day

Lisa Wilson began the day at Ness Point at 4:30am with her son and an MND Association banner to capture the sunrise on Global MND Awareness Day. Ness Point, also known as Lowestoft Ness, is the most easterly point in the British Isles.


It was much later in the day when Malcolm Chubbock, Anne Gillett and Sue Heal met in Norwich to take photos in front of Norwich City Hall shortly after 10pm. As has become customary Norwich City Hall was illuminated in blue and orange, the colours of the Motor Neurone Disease Association.



We are grateful to the Culture & Events Officer at Norwich City Council who has added the date to his diary to ensure that the light up is a recurring event.


Sue wrote to all of the Norfolk MPs, and some of the councillors around the county who have been involved in adopting the MND Charter, and invited them to mark the day by posting on Twitter. We are grateful to those who did or who sent emails in support of our work.


Thursday 18 June 2020 Ascot Ladies Day

Christine Wells organised an Ascot Ladies Day for a small group of friends. They had great fun with lunch, champagne, quizzes, best hat competition and sweepstake on three races. Together they raised £131.50 for the Branch for which we are very grateful.


Euphonia Project - Can You Help?

We need your help – read on to find out why and how!


It may sometime in the future help people with MND who have slurred speech to be better understood by voice recognition systems. This is why the MND Association are supporting Euphonia and sharing the ways that you can get involved.

Full details here


Wednesday 19 February 2020 Notcutts Coffee Morning

Numbers attending our coffee mornings at Notcutts are very variable; everyone is welcome. On 19 February, there was a wonderful mix of people attending for the first time and those who come regularly. We were delighted when our numbers were boosted by the arrival of members of the BroadBeat Choir. It seemed like a good day to take some photos, a selection are shown below.


Each year the BroadBeat Choir support a different local charity by receiving donations for whole choir performances. Individual members also raise money through sponsorship and holding coffee mornings. Throughout 2019, the BroadBeat Choir raised money to support the work of the Norfolk, Norwich and Waveney Branch. Their founder and Musical Director, Sandra Edwards, presented us with a 'bag of cash' containing £158.32, at the coffee morning. This brought the total raised throughout the year to £1,675.92. That is a seriously impressive result for which we are extremely grateful!


The members of the Choir give their time freely and take no expenses, some weeks performing as many as three times. Rehearsals take place in Norwich, Wroxham, Neatished, Blofield and Brundell. If you want to read more about the Choir you can visit their website and, if you want to sing, they say new members are welcome to join at any time.


Our next coffee morning at Notcutts is on Wednesday 18 March – if you are affected by MND or know someone who is, and would like to come and talk, we would love to see you.


Thursday 13 February - Marsh Christmas Charity Car Park cheque presentation

Car Park Cheque

Thank you to everyone who used Marsh’s car park in Norwich during the weekends between 23 November and 22 December 2019 and donated a minimum of £4 to park all day. Many people very generously asked us to keep the change having given us a £5 or £10 note.


We would like to thank all the staff (over one hundred) who volunteered their time to act as marshals, and who made the Branch members who were able to help very welcome. Of course we would also like to thank our volunteers too! Special thanks go to Stuart Palmer who cooked bacon butties for the volunteers on his shift!


In the last thirty years Marsh and staff who volunteer have raised over £350,000 for charitable causes – an amazing sum.


Malcolm and Judy, pictured here with Stuart, were able to attend the cheque presentation on Thursday 13 February 2020.