Norfolk, Norwich and Waveney Branch


Forthcoming events





Coffee mornings

The coffee mornings are informal gatherings for people with MND and their carers. Refreshments can be purchased in the coffee shop at Notcutts and at Cherry Lane. They take place between 11am and 1pm, there is no need to let us know in advance that you will be coming – you will always be welcome.


Advance notice of future dates for Notcutts, Daniels Road, Norwich, NR4 6QP for 2020

15 January

19 February

18 March

15 April

20 May

17 June

15 July

19 August

16 September

21 October

18 November


Advance notice of future dates for Cherry Lane Garden Centre, Beccles Road, Fritton, Great Yarmouth, NR31 9EU for 2020

29 January

26 February

25 March

29 April

27 May

24 June

29 July

26 August

30 September

28 October

25 November


Carer Friendship Group

Informal group, meeting for coffee every the third Wednesday of every month from 11.00 am to 12.30 pm in the cafe at Tapping House, The Norfolk Hospice, Hillington PE31 6BH. All carers or former carers of people living with MND very welcome. For information contact Dianne on 07789 281100 or


Suffolk Support Meetings

Suffolk drop in support meetings calendar for 2020

Informal Coffee Mornings


Advanced notice of Open Meetings for 2020


Sunday 19 April 2020: Annual General Meeting and Open Meeting 1:00pm - 4:30pm at St Andrew's Eaton Church Hall, Church Lane, Norwich, NR4 6NW. We are considering a new venue for 2021, please let us know if you have any suggestions. Kelda’s Kitchen will be providing a cold buffet lunch.


We are pleased to announce that Helen Pye, from the Environmental Control Service for Norfolk based at the Colman Centre, has agreed to be our guest speaker. She will give a short presentation (30 minutes or less) on environmental controls. Examples include controls to operate equipment such as intercom/door release, telephone, lamp or television - and so much more; it promises to be an interesting talk.


Sunday 19 July 2020: Open Meeting from 12:45pm - 4:30pm at Upton Village Hall, Cargate Lane, Norwich NR13 6AU.


Sunday 22 November 2020: Open Meeting starting at 12:00 - 4:30pm at Wortwell Community Centre, Tunbeck Close, Wortwell, IP20 0HS. The first hour is available to chat and purchase Christmas cards before lunch is served.




Wednesday 29 April 2020 - Youngs Brothers Testimonial

We are pleased to publicise the Youngs Brothers Testimonial at The Great Room, Grosvenor House, London W1. Tom and Ben Youngs have played for Leicester Tigers together as well as England and the British and Irish Lions. You are invited to celebrate their achievements in the company of stars from the worlds of rugby, sport and entertainment. The full details of this event are available on the flyer, which also includes a form for booking tickets or a full table.


The money raised during the Testimonial Year will be donated to Tom and Ben’s chosen causes – the blood cancer research charity Bloodwise and the MND Association. The latter has been chosen in support of their cousin, Jake van Poortvliet, who is living in our Branch area. EDP article here


Saturday 16 May 2020 Maverick Adidas Terrex Ultra Snowdonia

by Joe Gilbert

A year ago I started fundraising for MND association after my Mum's diagnosis. Thank you all for your amazing support and getting me to just under £3,000. Your support is working, since last time there have been real break throughs in Motor Neurone Disease studies. I'd really like to push on and hit my target of £5,000 whilst my Mum can see it, so I've found my next painful/stupid challenge.


Joe Gilbert

In April 2019, I ran a 53 mile ultramarathon along The West Highland Way in Scotland over hills and mountains, 11 hours in the rain and cold. It was brutal and broke me physically and mentally a few times over.


Now I'm taking on Snowdonia. On May 16th I'll be running an ultra marathon with almost double the elevation of the Highland Fling. Maverick Adidas Terrex X & Ultra Snowdonia 10,000ft elevation in total, a third of the way up Mount Everest. The first 5 miles are from the base of Snowdon to the summit of Snowdon, then after descending down a mountain ridge path I'll carry on to run over two more peaks in Snowdonia. This is going to be incredibly tough and I'm worried I've bitten off more than I can chew.


To make it more of a challenge I'll be training in the flattest area of the UK. There is a fine line between determination and stupidity!


Please sponsor me to keep fundraising for MND. This is working, breakthroughs are finally being made and I don't want to stop until there is a cure.


Joe's Mum is living in our Branch area. We are delighted that he is continuing to raise much needed funds to further research. If you would like to donate to MND Research through Joe's Just Giving page the link is


Thursday 18 June 2020 Wymondham U3A Coffee Morning

Wymondham U3A hold regular coffee mornings every Thursday between 10am and 12 noon in Wymondham Central Hall, Back Lane, Wymondham, NR18 0QB. There is plenty of paid parking in the car park behind Central Hall, the Hall. It is a wheelchair accessible venue.


They have kindly offered to host the coffee morning on 18 June to raise funds for our Branch. Everyone is invited to swell their numbers on this occasion, there is a small entry charge of 50p to cover tea/coffee. If you have raffle prizes, or ideas for activities that you think might be suitable for raising money, please contact Sue Heal on 01953 6060569 or email


Charity Golden Bond places for the Great North Run on 13 September 2020

....are now available. The Great North Run is the Association's second biggest annual fundraiser. There are 10 places on offer to Branches and Groups which will be filled on a first come first served basis.


The supporter needs to register with Stephanie Stewart rather than do this online – this is to make sure the Branch is invoiced. Stephanie is the Senior Events Fundraiser at the MND Association, 10-15 Notre Dame Mews, Northampton, NN1 2BG and can be contacted by telephone on 01604 611761 or by email at  The cost to the supporter is £20 registration fee (rising to £35 after the early bird discount ends on 1 January). In addition the Branch is invoiced for the cost of the place at £55, thus the sponsorship needs to cover the costs and hopefully raise a significant additional sum to come directly to the Branch. If you are interested it is important to register quickly – the ten places will not last long!


In addition it would be very helpful if you could contact us so we know who is applying before we receive the invoice! Many thanks.


David Banks is raising money for the MND Association

David Banks has created some fascinating booklets about a golden era on the Norfolk and Suffolk Broads. A series of four booklets called 'memories' feature stories, both fact and fiction, about Norfolk and Suffolk. The first is now available for purchase for £6 with £2 from every copy sold coming to the Branch. More details can be found here  The page gives an email address and link to his JustGiving page where you can purchase the booklets.