Norfolk, Norwich and Waveney Branch



Forthcoming events





From September 2020 we will be holding virtual coffee mornings on the third Wednesday of every month from 12 noon for around an hour. Please email to request the link. The next coffee morning is on Wednesday 18 November.


Coffee Mornings

Coffee mornings have moved online and will start at 12 noon on the third Wednesday of each month until further notice. Face to face coffee mornings at Notcutts and Cherry Lane are cancelled until the end of 2020 on the advice of the MND Association, we hope to resume them as soon as we are advised it is safe to do so.


The online coffee mornings are informal gatherings for people with MND and their carers. Email if you would like to receive a link to one of the meetings, which will be held using Zoom. Please send a fresh email for each date so we know who to expect, it doesn’t matter whether you would usually have attended Notcutts or Cherry Lane - there is space for everyone in a virtual meeting! We hope you will feel welcome and find them a relaxed way to meet and socialise. If you need to talk to someone after the meeting just let us know and one of us will get back to you.


Advance notice of future dates

16 September - Online

21 October - Online

18 November - Online


Carer Friendship Group **Cancelled until further notice due to Covid-19.**

Informal group, meeting for coffee every the third Wednesday of every month from 11.00 am to 12.30 pm in the cafe at Tapping House, The Norfolk Hospice, Hillington PE31 6BH. All carers or former carers of people living with MND very welcome.


Suffolk Support Meetings **Suffolk meetings are cancelled until further notice.**

Suffolk drop in support meetings calendar for 2020

Informal Coffee Mornings


Advanced notice of Open Meetings for 2020


Sunday 22 November 2020: It will not be possible to hold our Open Meeting at Wortwell Community Centre, instead the meeting will be held online using Microsoft Teams. This worked well for our Open Meeting in July. We will be sharing further details nearer the time.


In the past we have used the first hour to chat and purchase Christmas cards before lunch is served. We are looking at ways in which we might facilitate the purchase of Christmas cards to see if it is financially viable given the cost of posting packages to individuals.




Watch for new a date - Wymondham U3A Coffee Morning

Wymondham U3A hold regular coffee mornings every Thursday between 10am and 12 noon in Wymondham Central Hall, Back Lane, Wymondham, NR18 0QB. They kindly offered to host a coffee morning on 18 June to raise funds for our Branch, sadly the event has had to be postponed – a date will be agreed once it is safe for us to meet again. Everyone will be invited to swell the numbers. There will be a small entry charge to cover tea/coffee. There is plenty of paid parking in the car park behind Central Hall, which is a wheelchair accessible venue.


In the meantime if you have raffle prizes, or ideas for activities that you think might be suitable for raising money, please contact Sue Heal on 01953 606569 or email


Postponed Saturday 29 August 2020 One Way Ticket with MND Fundraiser for the MND Association - Craft Fair

Lisa Wilson was organising a Craft Fair at St Andrew’s Church, Roman Road, Lowestoft, Suffolk, NR32 2DQ. However, it has been agreed that safety is paramount and in the light of the Covid-19 pandemic has reluctantly postponed the event. She is now working hard to ensure it is a bigger and better event that will hopefully take place next Easter. Watch for further details for 2021.


Sunday 13 September - Sunday 18 October Mission 5000

Mission 5000

We are looking for people to join a brand new virtual fundraiser to support the Norfolk, Norwich and Waveney Branch; Mission 5000. Along with MND Association national office and branches and groups across the country, we want to unite the whole MND community and cover 5000 miles. That represents a mile for every person living with MND in the UK. Participants can join the challenge and run, walk, swim, cycle or scoot (or any way they choose - alone or as part of a team) their miles, between 13 September and 18 October. Participants can cover their pledged miles on one day, week or over the whole 5 week period. This isn’t just a running challenge and we would love to see whole families taking part together.


The money you raise will help us support local families affected by MND who need our support now more than ever. Sign up by visiting


Participants who raise over £100 will receive a limited edition Mission 5000 medal.


As you are aware the Covid-19 pandemic has resulted in many community fundraising events and mass sporting challenges being cancelled or postponed with a consequent loss of income. Anyone can take part and raise funds, whether you have been in training for an event or not. Please make it clear on your donation page, such as JustGiving, that you wish the funds to come to the Norfolk, Norwich and Waveney Branch, and when you register please let national office know that you would like the funds used to support our work here in Norfolk.


Sue Heal has signed up to Mission 5000 and will be walking 75 miles, one mile for every person living with MND in our branch area - and a little extra. You can help her achieve her target to raise £1,000 in support of the work of the Norfolk, Norwich and Waveney Branch by visiting her JustGiving page.


October 2020 East Regional Focus Event at the Holiday Inn, Norwich North Postponed

We were looking forward to the event being hosted in Norwich! Sadly, in line with government guidelines to limit the spread of coronavirus the Regional Focus events planned for this year have been postponed. The Association is reviewing options for alternatives, including arranging virtual events. We will share updates on Facebook and the branch website as they become available. Updates will also appear in Thumb Print magazine, which is posted to those who have registered membership of the Association.


Saturday 3 October 2020 Endurance Life, Coastal Trail Series, North York Moors

by Joe Gilbert


Joe Gilbert

My Mum was diagnosed in November 2018 with an expected life expectancy of 2 years. Covid-19 has thrown in some horrific complications which has made the past few months really difficult when thinking about carers for my Mum or just even being able to see her when time is so precious. It has also impacted my fundraising with event after event being cancelled or postponed. I had hoped to complete a few iconic events so far this year but I have spent my time working from home at my dining room table. I have kept pushing on with my fundraising regardless and I am so close to my target of £5,000, I am now over £4,500 and need the final £500, it would mean so much for me for my Mum to be able to see my hit my target.


I have a new challenge now that looks to be set in stone and not likely to be cancelled, it is the "Endurance Life, Coastal Trail Series - North Yorkshire Moors", a 35 mile ultra marathon along the coast by Ravenscar. Anyone who knows that area knows there are a lot of steep ups and downs as you go up to the moor tops and down to the coast, the route racks up a considerable amount of elevation, and I am training in Cambridgeshire, the flattest part of the country, with an addition of a newly acquired lockdown belly! So this won't be easy. I had switched out of my training routine and signed up to this race without time for a full training plan, but eager to complete an event and push on with my fundraising. I will be undertrained and this will hurt, there is no other way to put it, but I am hoping it can inspire enough people to help me hit my target £5,000, which would be an incredible achievement in approximately a year and a half.


If you'd like to help me, I really appreciate it, and every little helps, even just £1, if everyone who read this donated £1 I would hit my target.


Thank you all for your amazing support and getting me this far.


Joe's Mum is living in our Branch area. In April 2019, Joe ran a 53 mile ultramarathon along The West Highland Way in Scotland over hills and mountains, 11 hours in the rain and cold; a stunning achievement. We are delighted that he is continuing to raise much needed funds to further research, and hope that this event can take place after earlier disappointments! Shortly before 25 August, Joe had met and exceeded his target, which is brilliant - but he is still happy to collect further donations!


2021 Lisa’s MND Fundraising - Brighton Marathon, Endure 24 Reading and Great North Run

Lisa Wilson had planned to take part in the 2020 Great North Run, but like so many events it has been cancelled due to Covid-19. However, she has planned a spectacular year of fundraising in 2021. Lisa is raising money in memory of her husband, Steve. You can read her story and help her reach her target HERE


Wednesday 28 April 2021 - Youngs Brothers Testimonial

Initially planned for 29 April 2020, the Youngs Brothers Testimonial at The Great Room, Grosvenor House, London W1 has now been rearranged for next year. Tom and Ben Youngs have played for Leicester Tigers together as well as England and the British and Irish Lions. Once again you are invited to celebrate their achievements in the company of stars from the worlds of rugby, sport and entertainment. The full details of this event are available here.


The money raised during the Testimonial Year will be donated to Tom and Ben’s chosen causes – the blood cancer research charity Bloodwise and the MND Association. The latter has been chosen in support of their cousin, Jake van Poortvliet, who is living in our Branch area.


David Banks is raising money for the MND Association

David Banks has created some fascinating booklets about a golden era on the Norfolk and Suffolk Broads. A series of four booklets called 'memories' feature stories, both fact and fiction, about Norfolk and Suffolk. The first is now available for purchase for £6 with £2 from every copy sold coming to the Branch. More details can be found here  The page gives an email address and link to his JustGiving page where you can purchase the booklets.