Norfolk, Norwich and Waveney Branch



Forthcoming events





If you need support or just someone to talk to please contact us and someone will get back to you.

We look forward to seeing people in person as soon as the government advice makes this possible, until then we are considering holding virtual coffee mornings on Zoom. Let us know if this is something that you would be interested in, email Sue for Notcutts, Judy for Cherry Lane or use the contact us page.


Coffee mornings **Coffee mornings are cancelled until further notice.**

The coffee mornings are informal gatherings for people with MND and their carers. Refreshments can be purchased in the coffee shop at Notcutts and at Cherry Lane. They take place between 11am and 1pm, there is no need to let us know in advance that you will be coming – you will always be welcome.


Advance notice of future dates for Notcutts, Daniels Road, Norwich, NR4 6QP for 2020

15 January

19 February

18 March - CANCELLED

15 April - CANCELLED


17 June  - CANCELLED

15 July

19 August

16 September

21 October

18 November


Advance notice of future dates for Cherry Lane Garden Centre, Beccles Road, Fritton, Great Yarmouth, NR31 9EU for 2020

29 January

26 February

25 March - CANCELLED

29 April - CANCELLED



29 July

26 August

30 September

28 October

25 November


Carer Friendship Group **Cancelled until further notice due to Covid-19.**

Informal group, meeting for coffee every the third Wednesday of every month from 11.00 am to 12.30 pm in the cafe at Tapping House, The Norfolk Hospice, Hillington PE31 6BH. All carers or former carers of people living with MND very welcome.


Suffolk Support Meetings **Suffolk meetings are cancelled until further notice.**

Suffolk drop in support meetings calendar for 2020

Informal Coffee Mornings


Advanced notice of Open Meetings for 2020


The Annual General Meeting and Open Meeting planned for Sunday 19 April 2020 has been postponed due to the coronavirus situation. More details will be available as soon as the Association advises us that it is safe to reschedule the AGM.


Sunday 19 July 2020 – an open meeting with a difference

The open meeting will now take place online using Teams and hosted by Liz Cooper, our Area Support Coordinator (ASC). If you would like to attend please contact Malcolm at by Friday 12 July. You will need to provide us with permission to contact you by email at least for the purposes of sending the link to enable you to attend this meeting to satisfy the General Data Protection Regulations and save him checking everyone’s contact preferences. It is not necessary to download the Teams App, although it helps, you are able to attend using your web browser – it seems to work well with Chrome, it doesn't appear to work with Safari.


We are delighted that Helen Pye, from the Environmental Control Service for Norfolk, is able to join us online as speaker. Her short presentation will cover environmental controls such as intercom/door release, lamps and telephone. Helen was due to speak at our AGM, we are very grateful to her for rescheduling and agreeing to join us in July.


Sunday 22 November 2020: Open Meeting starting at 12:00 - 4:30pm at Wortwell Community Centre, Tunbeck Close, Wortwell, IP20 0HS. The first hour is available to chat and purchase Christmas cards before lunch is served.




Ann’s Pilates Challenge

Ann, who is living with MND, is doing a 2.6 pilates challenge. She is doing 26 pilates exercises 26 times with her son as adjudicator. Read Ann's story on her just giving page and, if you are able please consider supporting her.


Watch for new a date - Wymondham U3A Coffee Morning

Wymondham U3A hold regular coffee mornings every Thursday between 10am and 12 noon in Wymondham Central Hall, Back Lane, Wymondham, NR18 0QB. They kindly offered to host a coffee morning on 18 June to raise funds for our Branch, sadly the event has had to be postponed – a date will be agreed once it is safe for us to meet again. Everyone will be invited to swell the numbers. There will be a small entry charge to cover tea/coffee. There is plenty of paid parking in the car park behind Central Hall, which is a wheelchair accessible venue.


In the meantime if you have raffle prizes, or ideas for activities that you think might be suitable for raising money, please contact Sue Heal on 01953 606569 or email


June 21 Global MND Awareness Day

On Sunday 21 June, like many MND/ALS communities across the world, we will be marking Global MND Awareness Day. The Association volunteer team said, “Now more than ever, with the world in the grip of a global pandemic, we want to shine the spotlight on motor neurone disease and reach out to the 5,000 people in England, Wales and Northern Ireland who are living with this brutal disease.”


We are delighted that once again Norwich City Hall will be lit in blue and orange. Whilst we usually invite councillors and supporters, this year we invite people to come and take their own photos and to share them on Facebook and Twitter using #HandOf (as in extending our hand of support and love), or email sueheal@btinternet and we will share your photos.


Saturday 29 August 2020 One Way Ticket with MND Fundraiser for the MND Association - Craft Fair

Lisa Wilson is organising a Craft Fair at St Andrew’s Church, Roman Road, Lowestoft, Suffolk, NR32 2DQ from 10am - 3pm. Click here for more information.


Sunday 13 September 2020 Great North Run

Lisa Wilson will be taking part in the Great North Run, the Association's second biggest annual fundraiser. Lisa is raising money in memory of her husband, Steve. You can read her story and help her reach her target HERE


October 2020 East Regional Focus Event at the Holiday Inn, Norwich North Postponed

We were looking forward to the event being hosted in Norwich! Sadly, in line with government guidelines to limit the spread of coronavirus the Regional Focus events planned for this year have been postponed. The Association is reviewing options for alternatives, including arranging virtual events. We will share updates on Facebook and the branch website as they become available. Updates will also appear in Thumb Print magazine, which is posted to those who have registered membership of the Association.


Saturday 10 October 2020 Maverick Adidas Terrex Ultra Snowdonia

by Joe Gilbert

A year ago I started fundraising for MND association after my Mum's diagnosis. Thank you all for your amazing support and getting me to just under £3,000. Your support is working, since last time there have been real break throughs in Motor Neurone Disease studies. I'd really like to push on and hit my target of £5,000 whilst my Mum can see it, so I've found my next painful/stupid challenge.


Joe Gilbert

In April 2019, I ran a 53 mile ultramarathon along The West Highland Way in Scotland over hills and mountains, 11 hours in the rain and cold. It was brutal and broke me physically and mentally a few times over.


Now I'm taking on Snowdonia. On 10 October I'll be running an ultra marathon with almost double the elevation of the Highland Fling. Maverick Adidas Terrex X & Ultra Snowdonia 10,000ft elevation in total, a third of the way up Mount Everest. The first 5 miles are from the base of Snowdon to the summit of Snowdon, then after descending down a mountain ridge path I'll carry on to run over two more peaks in Snowdonia. This is going to be incredibly tough and I'm worried I've bitten off more than I can chew.


To make it more of a challenge I'll be training in the flattest area of the UK. There is a fine line between determination and stupidity!


Please sponsor me to keep fundraising for MND. This is working, breakthroughs are finally being made and I don't want to stop until there is a cure.


Joe's Mum is living in our Branch area. We are delighted that he is continuing to raise much needed funds to further research. If you would like to donate to MND Research through Joe's Just Giving page the link is We hope that mass events can take place again in October!


Wednesday 28 April 2021 - Youngs Brothers Testimonial

Initially planned for 29 April 2020, the Youngs Brothers Testimonial at The Great Room, Grosvenor House, London W1 has now been rearranged for next year. Tom and Ben Youngs have played for Leicester Tigers together as well as England and the British and Irish Lions. Once again you are invited to celebrate their achievements in the company of stars from the worlds of rugby, sport and entertainment. The full details of this event are available here.


The money raised during the Testimonial Year will be donated to Tom and Ben’s chosen causes – the blood cancer research charity Bloodwise and the MND Association. The latter has been chosen in support of their cousin, Jake van Poortvliet, who is living in our Branch area.


David Banks is raising money for the MND Association

David Banks has created some fascinating booklets about a golden era on the Norfolk and Suffolk Broads. A series of four booklets called 'memories' feature stories, both fact and fiction, about Norfolk and Suffolk. The first is now available for purchase for £6 with £2 from every copy sold coming to the Branch. More details can be found here  The page gives an email address and link to his JustGiving page where you can purchase the booklets.